Organisations

The Brain and Spine Foundation is a registered charity which is funded almost entirely by voluntary donations. They provide support and quality information to people affected by brain and spine conditions, in order to reduce anxiety and help inform their choices.

Brain and Spine Helpline: 0808 808 1000 (UK) This Helpline is a free service staffed by neuroscience nurses. The nurses can answer questions about all neurological conditions, from the fairly common to the very rare, and can offer information and support on any medical or related social and emotional issues of concern.

The BrainIT group is an open, not for profit, collaborative network of clinicians, scientists and engineers working towards improving the monitoring and mangement of brain injured patients during their acute management in intensive care.

The European Society of Intensive Care Medicine is an international non profit-making association of doctors, nurses, physiotherapists and other allied healthcare professionals. The number of members is now above 5000. The Society is devoted to the promotion of intensive care medicine, education, research, and professional development.

The Neurocritical Care Society is a multidisciplinary, international organization whose mission is to improve outcomes for patients with life-threatening neurological illnesses.

The Brain Trauma Foundation (BTF) is dedicated to improving the outcome of Traumatic Brain Injury (TBI) patients worldwide by developing best practices guidelines, conducting clinical research, and educating medical professionals and consumers.

American association of neurological surgeons (AANS) is the organization that speaks for all of neurosurgery. The AANS is dedicated to advancing the specialty of neurological surgery in order to promote the highest quality of patient care.

National Institute of neurological disorders and stroke (NINDS) The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

American academy of Neurology (AAN) established in 1948, is an international professional association of 22,500 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.

The Society of British Neurological Surgeons (SBNS) The purpose of the Society is the study and advancement of Neurosurgery. This is achieved through the scientific meetings of the Society, through publications arising from deliberations about aspects of Neurosurgical practice and delivery of Neurosurgical services, through fostering professional relationships amongst neurosurgeons and through engagement with the public and bodies involved in the provision of care to patients requiring Neurosurgery.

European Association of Neurosurgical Societies (EANS) is an independent, supranational association of national European neurosurgical societies and individual members which arranges congresses, scientific meetings and symposia, including the quadrennial European Congress of Neurosurgery, the Annual EANS Meetings (formerly Vice-President Winter Meetings) and the European Training courses.

Brain Injured and Families - European Confederation is a young non-governmental organisation aimed at raising awareness of brain injury by creating a common European platform through co-ordination and co-operation between national associations of people with brain injury and their families.

World Federation of neurourgical societies (WFNS) Founded in 1955, the World Federation of Neurosurgical Societies (WFNS) is a professional, scientific, non-governmental organization comprising 5 Continental Associations, 103 National Neurosurgical Societies and 6 Affiliate Societies, representing some 30,000 neurosurgeons worldwide.

International Society for Pediatric Neurosurgery (ISPN) seeks to promote the health of children throughout the world by encouraging the ethical transmission and exchange of neuroscientific information and techniques related to Pediatric Neurosurgery.

I Have IIH Foundation are an International IIH Patient Support and Advocacy Organisation who are passionate and dedicated to raising awareness and funds for the IH Research Foundation, and IIH worldwide. They are in partnership with the Brain and Spine Foundation, Rare Disease UK, Rare Disease Day USA and the Global Genes Project, and many others. They are also a Cure the Process Campaign Partner. They are a unique group based in the UK, who help people to adapt to life with IIH.

Society for Neuroscience (SFN) The Society for Neuroscience (SfN) is a nonprofit membership organization of scientists and physicians who study the brain and nervous system. Their mission is to: advance the understanding of the brain and the nervous system, provide professional development activities, information, and educational resources, promote public information and general education, inform legislators and other policymakers.

Movement for Hope  foster art, science and advocacy collaborations to raise awareness and funding support for research, education and adaptive equipment purchases for people with neurological conditions affecting the brain and spinal cord. Their  mission is to encourage the advancement of art and science to raise awareness and support for neurological conditions and the full scope of multimedia art.

Idiopathic Intracranial Hypertension UK- Information and support for patients, families and medical professionals. The IIH UK website is a source of information for IIH – Idiopathic Intracranial Hypertension, and links to resources and information about IIH.

Intracranial Hypertension Research Foundation - promote, encourage and facilitate progress in the understanding and management of chronic idiopathic and secondary intracranial hypertension (IH). For patients, they provide a support system, educational programs and communication tools. For physicians and scientists, they sponsor research in basic and clinical sciences, education, training and patient care programs in the U.S. and worldwide.